top of page
  • maryepritchard

I've always dreamt of the day I hear my sister's real voice

Te is 13 years old and big sister to Annelise, aged 11 who has Rett Syndrome.

She is taking on the 24 hour Speechless for Rett Syndrome challenge this October.

How has your life been touched by Rett Syndrome?

Te: It's been such a blessing to meet all the families and girls with Rett Syndrome, hear their stories and share my own. They will be life-long friends.

Why did you decide to take on the Speechless challenge? Te: To experience what it's like – to understand what my sister has to go through each day.

What do you think the hardest part of the challenge will be?

Te: Not communicating verbally. Also, my Mum will be setting us everyday tasks throughout the day, and we'll have to communicate through symbols to complete them.

You are also doing another challenge this October; can you tell us about it?

Te: I’m also doing the 5k a day for Rett Syndrome challenge. I chose to do this because I wanted to raise awareness and get people to ask about Rett Syndrome. And be my sister's legs and walk/run for Annelise, because she can’t.

What’s your favourite thing about your sister, Annelise?

Te: I love her smile, it's so gorgeous, I love when she smiles and giggles with me.

If you could change one thing about Rett Syndrome tomorrow, what would it be?

Te: I would give my sister her own voice. I've always dreamt of a day to hear my sister's real voice.

You can show your support for this remarkable young lady by sponsoring her at:

110 views0 comments

Recent Posts

See All


bottom of page